Category Archives: Consumer Health Informatics

End-of-life resources

Through the ever so excellent Smart Patients forum, I found this page with end-of-life resources compiled by a stage IV cancer patient. Fantastic starting point to explore what happens at the end-of-life and how we can best prepare for it. [post 40 in … Continue reading

Posted in #blogg100, Consumer Health Informatics, Patient experience, Social media, Uncategorized | Tagged , , , | Leave a comment

Reading my EHR as a way to prepare

[Warning for oversharing – this post will contain details from my electronic health record] I’m waiting for my primary care center to call me back, and while I’m waiting I log into my online electronic health record. It’s always good to be … Continue reading

Posted in Consumer Health Informatics, Patient experience | Tagged , , | 1 Comment

The story of illness

I’m a researcher in health informatics – but growing up, what I always dreamed of was being an author, a storyteller. As a researcher, I of course get to write. And write, and write. But the storytelling is seldom in … Continue reading

Posted in Consumer Health Informatics, Narrative medicine, Patient experience, Social media | Tagged , , , , | 2 Comments

Physician Adherence

This amazing facebook post by equally amazing Hugo Campos deserves a blog post all to itself. Enjoy! Hugo turns the table on the old, worn out terms “compliance” and “adherence” which are usually used to describe patients and their behaviour … Continue reading

Posted in Consumer Health Informatics, Patient experience | Tagged , , | Leave a comment

How dangerous is it to worry?

This is a question that has been spinning around in my head for some time now. I’m on the train right now, returning home after 3 fun and inspiring days at the Vitalis conference in Gothenburg. One issue that we … Continue reading

Posted in #blogg100, Consumer Health Informatics, Patient experience | Tagged , , , | 2 Comments

Pneumonia or Pneumonitis?

Sounds pretty similar, right? What’s the difference? you might even ask. It’s a world of difference in terms of cause and treatment, at least that’s what I’ve learned during the course of this afternoon. With some help from my friends … Continue reading

Posted in Consumer Health Informatics, Patient experience | Tagged , , | Leave a comment

Is blood glucose 30 really high or really low?

Did I mention my dad had a blood glucose level of 30 the other day? We were really freaked out because it was so HIGH – and the homecare nurse immediately came and administrated insulin. Since I knew high blood … Continue reading

Posted in Consumer Health Informatics, Patient experience | Tagged , , | Leave a comment