Tag Archives: cancer

On empathy

I just had to share this. I hope I remember it myself the next time an urge to start “silver lining” comes to me. On the other hand, perhaps silver lining is a good coping strategy? In the blog post Cancer … Continue reading

Posted in #blogg100, Patient experience, Uncategorized | Tagged , , , , | Leave a comment

End-of-life resources

Through the ever so excellent Smart Patients forum, I found this page with end-of-life resources compiled by a stage IV cancer patient. Fantastic starting point to explore what happens at the end-of-life and how we can best prepare for it. [post 40 in … Continue reading

Posted in #blogg100, Consumer Health Informatics, Patient experience, Social media, Uncategorized | Tagged , , , | Leave a comment

The great mysteries of life

I have now experienced not just the beginning of life, in giving birth to my two children, but also the end of life, in the recent death of my father. This is my own very personal reflection on these mysteries of … Continue reading

Posted in Patient experience, Uncategorized | Tagged , , | Leave a comment

The importance of a shared meal

Food is important to me. I think everyone who knows me can vouch for that. I don’t know if people can be categorized into those that eat to live and those that live to eat, but I would probably belong … Continue reading

Posted in Patient experience | Tagged , , , | Leave a comment

Lifelines

I sneak by the room where you sit in your favorite chair – I don’t know if you’re sleeping. I don’t want you to see I’ve been crying. Again. I step carefully over the plastic tube that gives you oxygen. … Continue reading

Posted in Patient experience | Tagged , , , | Leave a comment

Fragmentation of care and patient safety

My father does not have diabetes. He has stage 4 kidney cancer though, and has been eating Afinitor for a few weeks. A frequent side effect of the medication is a rise in blood glucouse – which should therefore be monitored. His cancer … Continue reading

Posted in Patient experience | Tagged , , , | 4 Comments

Navigating unknown cancer waters

I downloaded this report “På okänt cancervatten” a while ago, but I’ve only been able to read short sections at a time. Not because I haven’t had time to (which is otherwise a common reason for my fragmented reading habits) … Continue reading

Posted in Consumer Health Informatics, Patient experience | Tagged , , , , | Leave a comment